It was released on the first anniversary of Wineland's death. Claire Wineland, inspirational speaker and social media star, dies one week after lung transplantBy Jessica Ravitz, CNNCystic fibrosis did not define Claire Wineland. Claire Wineland (1997 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. Get breaking news alerts& today's headlines inyour inbox. She revealed that after taking a break from creating videos for some months due to declining health, the company refused to allow her to log into any accounts relating to The Clairity Project. Im just really overwhelmingly grateful for all of this. There is no passionate rant to be had here I am just happy and thought I would let you all know. Cystic fibrosis is a genetic condition with no known cure. Entrepreneur and founder of the award-winning non-profit organization Claires Place Foundation, which provides support to families living with Cystic Fibrosis. I'm grateful for the chance to keep being a person," she said. I dont want to actually die. So grateful for everything this month. She has a younger sister named Ellie. What if they poured everything into her transplant, and she didn't make it or was not able to work again, she explained later. Im grateful for the chance to keep being a person. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure. I didnt expect to have a chance. The BBC is not responsible for the content of external sites. I would like to acknowledge Claire Wineland who passed away last night. She inspired countless people, invited -- no, demanded -- honest talk about illness and mortality, and brightened the worlds of those she touched with her smile, spunk and spirit.On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. Claire's Place Foundation is named in honor of Claire Wineland who lived with CF her entire life and passed away at the age of 21. She did. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. She had a popular YouTube channel, gave . Its not about how you feel second to second, she said. The BBC is not responsible for the content of external sites. In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. She died on Sunday September 2, 2018, after suffering a stroke following a double lung transplant. At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. She needed financial help. She attended the Santa Monica College, in California, but had to drop out of college, due to her illness. She founded her own company at 13. "The family intends to honor her memory by continuing to advanceClaire's Place Foundation, which she established to financially support others affected by her lifelong disease. Her father credits Claire with teaching him to not be afraid of what hasnt happened yet and to learn to love what is.. Shortly after the surgery, Wineland suffered a stroke due to a blood clot which "cut off blood flow to the right side of her brain. It hurts everything inside of me to make this video, she said into the camera. She expected to die young. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. They saw her into this world for her first breath and were with her for her last, Laura McHolm, the board chair for Claires foundation, wrote in a Facebook post. At the age of 4, she made an appearance in The Music Man. Due to her illness she spent most of her childhood in hospitals. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to theCystic Fibrosis Foundation. A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. She had a popular YouTube channel, gave Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. Claires Place Foundation is planning to continue extending support to patients. See yall on [the] other side.. She was a part of The Clairity Project, a website that featured educational and inspirational videos uploaded on YouTube. Its objective was to inspire people living with terminal illness, to lead a better life. None of it spooked me, Claire said afterward. She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. "I've struggled more with guys, depression drugs, family and career than I ever have with my illness. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. She was 21. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. It was a welcome, albeit terrifying, development for those who loved her.To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. [6] She was given a 1% chance of survival and awoke after 16 days.[6]. The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. She passed away peacefully, with her parents by her side. Claire and her mother beamed in a photo posted on social media after they learned her transplant was a go. "I've struggled more with guys, depression drugs, family and career than I ever have with my illness. "She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents' future if it didn't go well. Despite suffering from a critical illness, she maintained a positive attitude to life. Get to know the real life super hero behind our bubbly Snap identity. real family is great. The medical team that tended to her became family. As a TEDx speaker, she gave motivational speeches at numerous conferences worldwide, and as a YouTube star, she around 250,000 subscribers. Claires parents learned to trust their independent and strong-willed daughter. I want to see where it goes. At the time of birth, she had the life expectancy of only 5 years old. Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. She was an avid dog lover and had a dog named- Daisy.. Updated Claire Wineland 1997 - 2018 Share BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. Then came the call that offered new life. A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant. Magnolia Shorty Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Seeing people who are sick as anything more complex and intelligent than that would mean we couldnt use them as these false beacons of hope. Direct quote published by online women's magazine Glamour three days after her 2018 passing. She was a wonderful person and the world . Swami Vivekananda Cause of Death, Age of Death, and Other Facts! Founded a charity to help others suffering from the disease. Obituaries Section. What happened in the Ukraine helicopter crash? Claire Wineland 1997 - 2018 BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. Im grateful for all the people who donated to help me get through transplant. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. But Claire took on the evaluation process to get on the list with laser focus. Everything I'm proud of comes from some of the darkest things in my life. "Life isn't just about being happy. Cystic fibrosis did not define Claire Wineland. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. She never emerged from her medically induced coma. Louis Zamperini Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! On August 26, 2018, Wineland suffered a stroke due to a blood-clot that stopped blood flow to the right side of her brain. On September 2, 2018, at 6:00 pm, she took her last breath at the UC San Diego Thornton Pavillion, a week after undergoing a lung transplant. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. March 04, 2022 "Disability is not the word that should be used to describe what Claire had because she turned it into her platform. The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on. Pink Floyd, The Beatles, The Killers, The Rolling Stones, Ben Harper, Dr. Who, Dexter, Adventure Time, SpongeBob SquarePants, Harry Potter by J. K. Rowling, The Mortal Instruments by Cassandra Clare. Regarding her nationality, Wineland was an American and ethnicity wise she was white. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. It took having a fair amount of relationships and casual sex before I realized that I wasnt the empty smiling shell of a girl I saw reflected back in pictures. [2][3] She died from a blood clot one week after receiving a double lung transplant at the age of 21. Given the severity of the stroke and Claires advance directive, it became clear that it was time to let her go. A supportive space for people & families affected by Cystic Fibrosis. Also, Claires corneas and tissue was recovered and she will be able to enhance the life of up to 50 people, a family services specialist wrote to Yeager in an email message. 2023 BBC. [9], The Clairity Project is a website featuring a series of educational videos and vlogs hosted on YouTube which hope to inspire and educate others about living with a terminal illness. Claire Lucia Wineland (April 10, 1997 - September 2, 2018) was an American activist, author, speaker and social media personality. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. [10], Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. Menu. Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. "Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. Who was Ukrainian minister Denys Monastyrsky? All Rights Reserved. Obituaries Section. She never emerged from her medically induced coma. When it came to her care, she knew her body best -- what worked for her, what didn't and how far she was willing to go.So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. The medical team that tended to her became family. I use to live half time with my dad and half with my mom, but since I got sick we . A double-lung transplant, when successful, can add years to a patients life. 2. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". The BBC is not responsible for the content of external sites. Last night at 6:00pm, Claire Wineland our inspirational founder passed away. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. She died on Sunday September 2, 2018, after suffering a. You are an inspiration and brought joy to many. "Claire's gift is huge, I want your family to know that your daughter is a hero. Claires foundation was a way for her to assure that others living with CF enjoyed the same hope, strength and joy that she enjoyed. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. Claire Wineland's death was caused by stroke. Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. In one of the last videos Claire posted, she went where she hadn't before.A self-described "goofball," she usually engaged people with humor and optimism. Its a GO!! Claires gift is huge, I want your family to know that your daughter is a hero.. Claires Place Foundation offers two kinds of support. In 2017, Yeager recalled a conversation with Claire about death. She took great care to decorate her hospital room so it felt and looked like home. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. Menu. Revealed on her left ankle was a tattoo: the thumbs-up Dont Panic logo from The Hitchhikers Guide to the Galaxy.. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. Your email address will not be published. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. She was a voracious reader and wrote books like- Every Breath I Take, and Surviving and Thriving with Cystic Fibrosis. By mid-August, she was back on and feeling ready. She was 21. Rest in peace dearest Claire As most of you know, September 2, 2018 at 6:00pm, Claire Wineland passed away. The cause of death was a massive stroke she suffered soon after the transplant surgery. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. Shed work on a book promising it wouldnt be another happy sick person book and appreciate the small things like swims in the ocean for as long as she was able. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. Before signing off, Claire implored viewers to do one thing. She has a younger sister, Elanore Nordquist. On September 2, 2018, she passed away peacefully, at the US San Diego Thornton Pavilion. Her organs were donated to needy patients. Claire Lucia Wineland (April 10, 1997 September 2, 2018) was an American activist, author, speaker and social media personality. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. Cystic fibrosis is a genetic condition with no known cure. She is dynamic and so soul filled, a little angel, rest in Peace Claire, YOU are MY HERO, Your email address will not be published. No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. There is no passionate rant to be had here I am just happy and thought I would let you all know. Discovery Company. The 2019 film Five Feet Apart was inspired by and dedicated to Wineland, who served as a consultant on the film. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, We need to end this war, says Zelensky, after fatal helicopter crash, Iran man who beheaded wife jailed for eight years. Wineland and a friend, Chynna Bracha Levin, wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis, published by BusinessGhost, Inc. on Sept. 21, 2012. She'd work on a book -- promising it wouldn't be "another happy sick person book" -- and appreciate the small things like swims in the ocean for as long as she was able.Ata TEDx talkshe gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. A self-described goofball, she usually engaged people with humor and optimism. She was also a speaker for the motivational TEDx Talks.. Save my name, email, and website in this browser for the next time I comment. I mean that seriously, she said with her signature smile and laugh, her eyes not yet dry. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. "I didn't realize how much I didn't expect to live this long. She wasnt done contributing. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. I'm willing to deal with anything.". She appeared in an episode of Red Band Society and in the documentary series My Last Days. Claire Wineland Popularity Most Popular #8596 Born on April 10 #35 Entrepreneur #31 Her mother, Melissa Nordquist Yeager, and father, John Wineland, separated, when she was three years old. 2.61M subscribers Claire Wineland Dies at 21 and Leaves Beautiful Message Cystic fibrosis activist reveals the most important lesson she learned while living her life in a hospital room. In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. She played hide-and-seek with nurses and left explosions of glitter in her wake. Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughters aura and her ability to lift up those around her. Wineland enjoyed performing on stage from a young age. [5] She enjoyed performing from a young age and appeared in The Music Man at age four. She had a popular YouTube channel, gave A double-lung transplant, when successful, can add years to a patient's life.Claire's parents learned to trust their independent and strong-willed daughter. Also, Claire's corneas and tissue was recovered and she will be able to enhance the life of up to 50 people," a family services specialist wrote to Yeager in an email message. She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents future if it didnt go well. The Foundation has funded more than 26 families till now. She listened to the risks and the long list of side effects and emerged unfazed. Her organs were made available for transplant. The Times-Picayune Homepage. When she turned 13, she had a routine surgery that led to a blood infection that caused lung failure after which she was placed in a medically-induced coma. She underwent more than 30 surgeries during her lifetime. There is no cure, but dutiful breathing treatments which eat up hours each day can help with symptoms and complications. We invite you to share condolences for Claire Wineland in our Guest Book. Your effort and contribution in providing this feedback is much Notable quote: I do these talks to make a point. Claire Wineland spent a quarter of her life in the hospital. Im grateful for all the people who donated to help me get through transplant. Death is Inevitable. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. (Bio, Age, Family, and Death) Claire Wineland was an author and activist who was born in Austin, Texas, on 10th April 1997, to Melissa Yeager and John Wineland. Im not an innocent and Im not a child. Claire Wineland was known for her positivity, warmth, and humor. The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. Support Families offers personalized support and assistance in areas such as treatment, care processes and emotional support from other parent volunteers. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. Content may contain adverts they learned her transplant surgeries and progressive disease an! A life-shortening illness alerts & today 's headlines inyour inbox childhood in hospitals the chance keep! Claires Place Foundation, which was created by actor Justin Baldoni when living with terminal illness, to lead better!, September 2, 2018 at 4:55pm PDT implored viewers to do one thing seen as than! Speaker, she usually engaged people with humor and optimism and, eventually, leads respiratory. 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